mark reilly

Running for Dionne and everyone with Rett Syndrome

Fundraising for Reverse Rett
£23,614
raised of £10,000 target
Donations cannot currently be made to this page
Marathon des sables & 100 for Dionne, 4 April 2021
Reverse Rett

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RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

I am competing in the Marathon des Sables (MDS) in October 2021.This is a 156 mile ultra marathon in one of the most inhospitable places on earth, the Sahara Desert.It is a self sufficient race regarded as “the toughest foot race on earth”. The organisers will only provide me with water and I will race carrying my food for a week and sleeping bag in temperatures approaching 40 degrees during the day and dropping to around 10 degrees at night.

On 22nd May 2021, I will also undertake the 100 for Dionne. I will run 100 miles between the football clubs I played for, starting at St Johnstone Football Club, running to Motherwell Football Club then to St Mirren Football Club and finishing at Kilmarnock Football Club(100.3 miles).I will look to complete this in 24 hours and certainly within the 30 hours cut off.

Rett Syndrome is a rare neurological condition that renders girls unable to walk,talk,feed themselves and requiring 24/7 care. Rett Syndrome has been reversed in the lab in 2007 and clinical trials began in London in 2017. Reverse Rett receive no government funding. Dionne and everyone with Rett Syndrome deserve a better life.

Thank you.

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£23,613.54
+ £4,659.17 Gift Aid
Online donations
£23,613.54
Offline donations
£0.00

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