Josh Jones was a wonderful little boy with an infectious cheeky grin and we all loved him very much.

Josh was diagnosed with a rare condition called FOXG1 Syndrome.. This is a rare neuro-developmental disorder caused by a mutation of the FOXG1 gene, which impacts brain development and function and sadly he passed away in May this year.

Throughout his life, Claire House offered invaluable support to Josh and his family sometimes by simply being there and by providing, unwavering support.

Having seen this support first hand, and after speaking to Josh’s family I will be running the London Marathon in October in memory of Josh Jones and to raise as much as we can, for an amazing charity.

Please give whatever you can afford.

Thank you so, so much.

Mark