I know how hard it is to live with and manage congenital hyperinsulinism (HI). That is why I am joining Team CHIbra to raise funds to address the critical need for research for diagnostic tests that would increase timely diagnosis of HI, tools for better management, new treatments, and one day, a cure.
HI is a life-threatening disorder that causes dangerously low blood sugar levels. Prolonged or severe low blood sugar can cause seizures, brain damage, and even death. The consequences of HI are preventable; however, HI is often overlooked, misdiagnosed, or even when detected, mistreated.