Mike, Lisa and I are planning to undertake the 50km ultra challenge on September 28th 2024 in support of Ed Cooke, our close friend who was recently diagnosed with MND. Back in 2017 Mike and I completed the 100km South Downs Challenge - so after 7 years recovery we are now ready to tackle another long walk (all be it half the distance...)

With motor neurone disease, known as MND, messages from the motor neurones gradually stop reaching the muscles. This leads the muscles to weaken, stiffen and waste, which can affect how you walk, talk, eat, drink and breathe. Some people also get changes to their thinking and behaviour, but the disease affects everyone differently. Not all symptoms will affect everyone, or in the same order. Symptoms also progress at varying speeds, which makes the course of the disease difficult to predict.

MND is life-shortening and there is no cure.

MND affects up to 5,000 adults in the UK at any one time. There is a 1 in 300 risk of getting MND across a lifetime. It can affect adults of any age, but is more likely to affect people over 50.

https://www.mndassociation.org/