We are collecting money in memory of Sean Beauregard, who passed away on the 3rd of April after 20 years of happiness.

Sean was born in 1995 with osteogenisis imperfecta. He was given 3 days to live by his doctors, and he was born with 2 broken femurs, a broken clavicle and multiple breaks around his head which caused swelling. However, he beat this diagnosis and continued to improve daily. But over his first year he still had a further 16 fractures. Until he was five he had, on average, six to ten breaks each year.

At 3 months old he developed hydrocephilis and epilepsy, which caused him to live on Ward 7 in the Sick Kids on and off for months. He required shunts which relieved the pressure on his brain and further allowed him a better quality of life.

At the age of 6 he was strong enough to be put on a treatment which increased his bone density.  This was also the first time his Mum and Dad could actually hug him. 

At 4 years old he started nursery, attending during the day and going back to the High Dependancy Unit to sleep at night, due to needing more specialised care. He had multiple operations for things like hernias and respiratory infections, and he needed oxygen in order to safely sleep.

Throughout Seans life he touched many peoples hearts, and we wanted to give back in some way to the two places that helped him survive and thrive over the 20 years he was with us.

On Saturday the 21st of March Sean was taken into the Sick Kids High Dependancy Unit one more time, suffering from the flu. On the 27th of March he celebrated his 20th birthday, but his condition deterioated steadily. He suffered from a collapsed lung which then perforarated. This resulted in Sean being unable to recover. However, he was still bright and active, talking to everyone and playing peek-a-boo. But at 10:58am on the 3rd of April he sadly passed away.