Hi all, our good friend "Gillie" has decided to take on the task of climbing Mount Kilimanjaro to raise as much awareness and money for ROHHAD as he can! 

ROHHAD is a life threatening/limiting condition suffered by children and there are approx 100 known cases world wide! our daughter suffers from this extremely rare condition and we can not thank Gillie enough for his efforts in raising the funds for vital research in to finding a cure. I would also like to thank each and every person who has taken the time to read about ROHHAD and for any donations made.