My darling niece Ems has SMS and was diagnosed at five years old. It is such an unknown condition and my sister and her husband have created the most amazing life for Emily but it comes with daily challenges. As she grows older I realise the huge responsibility we all have to do better and know more about the differences parents can face and the support that an entire family needs living in a SEND world is crucial. That’s why I fully support the work of the SMS foundation UK.

The awareness required for this condition is exponential, my sister spends so much of her time and energy educating services across the board in order to provide the best possible care for Emily and it at times feels endless. If doing this run makes one more person see what SMS is about then I will be delighted! 

Help us to ensure every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.The Smith-Magenis Syndrome (SMS) Foundation UK is at the heart of our community. We will be the first point of contact for those seeking information and support. Nobody should ever feel isolated or alone. We value every person affected by this genetic disorder and shall empower them to reach their full potential as respected members of society.Connecting Families – Raising Awareness – Building Futures