Mac passed away on the13th April, aged 86.

The family would appreciate any donations for research into Labrune syndrome which ended the life of Mac's beautiful granddaughter Evie in 2020 aged just 12.

The University of Edinburgh is one of only 2 places in the world doing research into Labrune Syndrome, a hugely rare degenerative genetic condition which  causes an array of neurological symptoms in patients (including seizures, progressive loss of speech, function and mobility)and life threatening cysts on the brain.

Accessing funding for this research has been particularly difficult as Labrune syndrome is so rare, there are less than 100 people in the world.

 The University of Edinburgh is a registered charity whose impact and reach extends far beyond the education of the student body.With expertise in medicine, the sciences and humanities, and centres investigating everything from major brain disorders to inclusion and diversity; the University can be an effective and powerful force for advancement and change with a truly global reach.Like all charities we rely on donations and are extremely grateful to our fundraisers who have baked, cycled, hiked, swam, climbed & more to help our vital work.