Story
What's having ME like?
Imagine waking up every day feeling like you have bad flu with aching joints and muscles and no energy, then wack a massive hangover on top (without the fun bit).
I became ill in 2018 and diagnosed with M.E. a year later. I keep cutting back my activity in an effort to rest and get better, but without understanding the cause its difficult to know how to treat. Currently the only option is to try and manage the symptoms. Rest doesn't actually 'cure' but instead just stops us from getting worse. Please visit the ME Association website for more information.
An estimated 250,000 people suffer in the UK, many far worse off than me. This is likely to grow with 50% of long covid cases likely to be classed under the M.E. diagnosis.
Funding for research has been lacking for decades. Understanding is slowly growing and new discoveries keep being found so please help by donating!