Matthew Burns

Luca's Ride for ROHHAD

Fundraising for ROHHAD Association
£1,558
raised of £500 target
Donations cannot currently be made to this page
In memory of Luca Pucella
ROHHAD Association

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We fundraise for ROHHAD Research & Support to improve survival rates worldwide

Story

Luca Pucella was a pupil at Headlands School who suffered from the rare and life limiting illness called ROHHAD syndrome and sadly passed away on Saturday 25th November.

ROHHAD syndrome affects only 75 people in the world and with it comes complex medical requirements.  Despite this Luca had a lot of energy and he wanted to make a difference to the world.

Luca had met another young boy who had recently been diagnosed with the same illness as him and he felt very passionate about raising money.   Luca had been planning a fundraising cycle ride with Matthew Burns the Headmaster before he passed away and so the staff and pupils at Headlands would like to help him fulfil this generous wish. 

‘Luca’s Ride for ROHHAD’ will take place on Thursday 21st December, leaving Headlands School at 1.00pm taking a route along the barrage from Penarth to Cardiff, followed by refreshments and a celebration of Luca’s time at Headlands School at 2.00pm.

Please donate if you can.

Thank you.

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About the charity

ROHHAD Association

Verified by JustGiving

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ROHHAD is a rare life threatening and life limiting condition affecting Children worldwide. The Charity mission is to - Fund and promote research leading to a new understanding of and treatments for ROHHAD, one day leading to a cure. We also offer support to those affected and raise vital awareness

Donation summary

Total raised
£1,557.60
Online donations
£1,557.60
Offline donations
£0.00

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