Story
Jess was born with a syndrome called Di George Syndrome, also known as 22q11 deletion. This varies from child to child, and for Jess, her syndrome included Congenital Heart Defect and learning difficulties, among many other traits. But in 1994, knowledge of Di George Syndrome was limited, both medically and for the every day person - including our family.
The Children's Heart Surgery Fund is particularly special in the story of Jess as it was this charity both in Killingbeck and Leeds General Infirmary (LGI) that provided support to my family in the earlier years of Jessica's life.
Jess passed away on February 6th, 2015. And we can only hope that any money raised after Jess' death will help to fund future research and understanding and support for families who have children born with similar magic powers as Jess. So we ask of you, instead of buying flowers, cards or gifts, that you please donate what you would spend to CHSF.
Regardless of being born with a heart defect and having survived 3 major and 2 minor heart surgeries, Jess had the biggest heart, smile and personality. There will never be enough space on paper or the Internet to describe our sister, my parent's middle child, our third piece to the Fielding trio. So all I can say for now is that it is a privilege to have known her as our sister.
We can imagine Jessica had a lasting effect on most of you, too.
Love from her big sister, her protector, her other half,
Rebecca