Loulou Virgona

Loulou's Writing for Adam

Fundraising for DEBRA Australia
A$602
raised
Writing for Adam, 1 May 2021
PB4EB 2021
Campaign by DEBRA Australia (RCN ABN: 72 704 515 571)
Making a difference is such a feel good thing to do. By joining our tribe in the months of May and June you can make a difference in the lives of all those living with EB by challenging yourself to beat your own PB!

Story

Hi Everyone,

I had never heard of Epidermolysis Bullosa (EB) until my friends Angie and John had their absolutely adorable son Adam. 

Adam is the greatest warrior I know! He has just started school this year and is having a great time. His school days are not always easy: there's blister management, making sure his clothes don't rub against his skin, making sure certain activities aren't too abrasive. So many things that might seem easy and quick, take time.

 Angie and John are the greatest parents around! But even the greatest parents need support. By raising money for EB, we can support the EB Nurse Program that has been such an invaluable support to Angie and John's family and many others. 

To raise money for EB I am going to be writing 500 words a day for the month of May. PB4EB

Share this story

Help Loulou Virgona

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the campaign

Making a difference is such a feel good thing to do. By joining our tribe in the months of May and June you can make a difference in the lives of all those living with EB by challenging yourself to beat your own PB!

About the charity

DEBRA Australia

Verified by JustGiving

RCN ABN: 72 704 515 571
DEBRA Australia is a not for profit organisation that works tirelessly to support those living with a group of rare skin blistering disease called Epidermolysis Bullosa (EB). DEBRA Australia assists in improving the lives of children and adults living with EB, the debilitating condition.

Donation summary

Total raised
A$602.00
Online donations
A$602.00
Offline donations
A$0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.