Louise Dalgleish
Louise's Junior bupa great south run page
Fundraising for Fanconi Hope
Story
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Facing the Future Together
Fanconi Anaemia (FA) is a rare, life-limiting genetic disorder causing bone marrow failure in children and a predisposition to gynaecological and head & neck cancers, together with other complications both in childhood and in later life.
Whilst the bone marrow failure element can be corrected through bone marrow transplantation from a well-matched donor, there is still no cure for the cancer-predisposing condition .
Fanconi Hope is a national charitable trust set up in 2008 by parents of FA-affected children and clinicians with an interest in FA to provide guidance and information for patients, families, clinicians and researchers.My name is Louise and I have fanconi anaemia, I had a bone marrow transplant on 17th September 2012 from an unrelated donor, I also had chemotherapy and radiation.