Lola is a beautiful 4 year old girl. She has a rare neurogenetic condition called Angelman Syndrome.

Angelman syndrome primarily affects the nervous system and causes severe developmental and intellectual disabilities. It's characterized by speech impairment, balance and coordination issues, and a happy demeanor.

Lola has refactory epilepsy, even while on 3 different epilepsy drugs she can have up to 60 petit mal seizures a day. At the start of this year she had an operation to fit a Vagal nerve stimulator. The stimulator sends regular, mild electrical stimulations through this nerve to help calm down the irregular electrical brain activity that leads to seizures.

Lola works really hard to achieve milestones, she sometimes takes a few unaided steps but with her lack of balance and seizures she often falls. She has a walking frame which helps give her independence and cause mischief.

She has a wonderful personality, is very determined and knows what she wants!

Caring for a disabled child brings some challenges but also lots of additional costs thats why we have teamed up with Tree of Hope.

As Lola gets bigger and out grows the standard sized toddler things, we need to start looking into items made for special needs children.

Safety bed, pushchair, slt sessions, highchair, car seat and nappies to name a few, so we are here to hopefully raise some money towards the additional costs that come with raising our amazing daughter.

Thank you so much for taking the time to visit Lolas just giving page and if you are able to donate it is so appreciated.

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7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects.  If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.