Hi my name’s Lizzie and I’m running the London marathon on the 2nd October 2022 for my charity DEBRA.  

I have the rare hereditary skin disorder Epidermolysis Bullosa Simplex, bit of a mouth full, simply put- on my feet my skin is more fragile and can blister easily, and yup I’m running a marathon.

My story: 

I’m 29 and I’m still learning how to live with EB, for me I’m lucky as it generally doesn’t have a huge impact on my day to day life, my skin seems to have gotten tougher you might say. Though when I was younger my feet were more fragile so would blister frequently causing pain and discomfort; plasters, needles, scissors, pain relief and occasional bandages, were the norm. My parents helped see that my sores were attended to then I’d just crack on and occasionally get asked from loved ones “how’s your feet?”. 

This was no mean feet (see what I…yup 😉) though I’d love it if families, friends, teachers, clubs, workplaces etc. are made aware of EB and nope it ain’t just “bad shoes”, it’s a hereditary skin condition.

I want to run the marathon to prove to myself, help inspire others they can despite their restrictions and give back to my charity- DEBRA. 

I feel lucky because there are people who have severe EB, blistering that can occur all over the body and there is no cure. But DEBRA is a medical research charity dedicated to finding the treatment and eventual cure of EB. 

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DEBRA’s statement:

DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community.Together we #FightEB and together we will beat EB.