2 years ago, we were preparing to run the 2020 Manchester Marathon. The week following our last long training run, the country went into lockdown and we as a family went into shielding for what would be 4 months. Obviously, Manchester Marathon 2020 didn't go ahead. 

2 years on, we are back in training and Manchester 2022 is our chance! 

These two years have been tough for all of us in more ways than we can count. But for us, despite Covid taking the headlines, Duchenne has continued. Hiding in plain sight underneath the pandemic, it has gradually taken its toll on Sebastian and we are in a different place than we were just two years ago. Meanwhile charities have lost huge amounts of funding through the impact of the pandemic, not least due to events like Manchester 2020 being called off.  Vital research has been delayed. The need for the support charities like Action Duchenne provide to families like mine has never been greater. If possible, I feel even more strongly about raising money and awareness now. We need it more than ever. 

I am lucky enough to be running this marathon with Jo, Polly and Hannah. These ladies keep me going on many a training run, but also offer me more support through this journey than they realise. For them to be running 26.2 miles with Sebastian in their hearts means such a lot. 

Duchenne muscular dystrophy is a severe muscle wasting condition. People living with Duchenne typically need to use a powered wheelchair from their early teens. Life expectancy is around 30 years, there is no cure.I am raising money for Action Duchenne, an amazing UK charity which spends 88.7p in every £1 they raise on ground-breaking Duchenne research, world-class support for Duchenne families, and cutting edge science education.Please donate to help Action Duchenne continue their vital work.Thank you for your support.