Lisa Woolley

Running to Reverse Rett

Fundraising for Reverse Rett
£500
raised of £500 target
Donations cannot currently be made to this page
Event: BUPA Great Manchester Run 2012, on 20 May 2012
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thanks for taking the time to visit my JustGiving page.

My Step-Daughter, Beth has Rett Syndrome, she is reliant on others for all her needs, 24hrs a day.  Beth has been part of my life since her diagnosis & over the years I've watched her develop the awful symptoms, such as seizures & loss of mobility.  Beth used to enjoy horse riding but can no longer sit up straight due to Scoliosis, which is so bad she's having an operation to have a metal rod attached to her spine on April 24th 2012. 

Despite all this Beth is a happy girl who never fails to keep smiling through everything she's faced with & makes me realise what's important in life.  I'm honoured to be part of her life, proud of all she achieves & love her as she is.  However, there is hope that she could have a better quality of life. 

Rett Syndrome was reversed in the lab in 2007 & much more recently it was announced that bone marrow transplants had arrested symptoms of Rett, in the lab.  Money raised by RSRT UK is used solely to fund research projects so the more money raised the closer we are to a cure.  Please help to fund that research, Beth & her Rett friends will be very grateful.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£500.00
+ £115.00 Gift Aid
Online donations
£500.00
Offline donations
£0.00

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