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Hi everyone,

Well here goes. Not really sure about all this but when Caroline asked me I knew I had to be a part of this. Emily did a skydive for Teds Veds 5 years ago and loved it as well as raising money for a truly amazing charity. I’m 50 this year and have decided, I must be crazy, that I will try and do a skydive. Both myself and Em want to raise £500 for Teds Veds and help to be part of finding a cure for this terrible disease. We have really got the easy part haven’t we. If you would love to see me and Emily do this and give to an amazing charity please sponsor us. Ted is the 11 year old sin son of our friend Caroline and his life is effected every single day as he suffers from Veds. 

Thank you so much xx

Here is a little bit about Veds

We are doing this skydive to support Annabelle's Challenge who are working tirelessly to hopefully one day, find a cure for Vascular Ehlers Danlos that Ted suffers with. 

Vascular Ehlers Danlos (VEDS) is a connective tissue disorder that affects all tissues, arteries and internal organs making them extremely fragile. Patients are at risk of sudden arterial or organ rupture. Vascular EDS is a rare type of Ehlers-Danlos Syndrome caused by an alteration, also known as a mutation in the COL3A1 gene. Because many individuals with Vascular EDS (VEDS) are only identified after a severe complication or death, it is likely it did not come to medical attention and therefore goes undetected.

For Ted, living with this condition isn’t easy. He cannot do what he wants to do and his life is very restricted day to day. When he was diagnosed we were told to make the most of every day we have with him. So hard to take in. He has been advised not to do any physical activity that will cause a sudden raise in blood pressure, avoid where possible any knocks or falls and not to take part in contact sports. For an 11 year old boy, this is causing a huge amount of frustration, upset and anxiety. He like us, lives in fear of having an arterial rupture, he lives in fear of dying young. He simply is a ticking time bomb.

We are raising money for Annabelles Challenge for Vascular Ehlers Danlos. This is the first UK charity devoted to raise awareness and find a cure for this condition. They have already created a much needed support network for families living with this condition, are continually educating so many medics about this condition are hoping to fund much needed research soon.

Any donation you can give would be gratefully appreciated in helping this charity hopefully finding a cure for this life limiting and threatening condition.

Thank you!!

Lisa and Emily xxxx