Thanks for taking the time to visit my JustGiving page.I am doing a Tandem Skydive for a special little boy Mason White who is close to my heart and want to raise as much money as possible for Debra the charity that supports EB (Epidermolysis Bullosa).

Mason was born in September 2008 and is an engaging, happy child with beautiful bright blue eyes. He smiles at you from photos and the only hint that something is wrong are the sores on his face and bandages under his clothes. But Mason has a serious, painful and life threatening condition called Recessive Dystrophic EB.

Recessive Dystrophic EB is a condition that won't get better and can't be cured. Mason's skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds. When he was born, the skin was missing from the whole of his right foot and leg and the top of his left foot. To help get a diagnosis, the hospital emailed photos of Mason's body to Jackie Denyer, a specialist EB DebRA nurse at Great Ormond Street Hospital, who confirmed that it was EB but a biopsy was needed to establish which type of EB Mason had. 

The severity of Mason's condition means that he has already been critically ill after the lining of his oesophagus came away. He now cannot swallow food, fluid or medication and he has to be fed through a Gastrostomy button in his stomach. If Mason tried to eat or drink anything in the normal way it would go into his windpipe and down to his lungs. Mason also has to cope with sores and blisters that constantly form on his skin, his body is bandaged and he lives a routine of lancing blisters, bandaging, coping with the pain and making regular trips to hospital.

From those days of in and out of the hospital, up until now, every moment is a gift, as any day that gift could be taken from you. Mason has taught so many people never to give up hope, just as he doesn’t, every day he is fighting a losing battle, as Masons E.B condition only develops and gets worse, but he never stops fighting, he’s always got his cheeky smile on his face. 

Mason is such an inspiration to everyone who meets him, and brings nothing but joy and happiness to us all, so support Mason, and others like him, and give something back, to help make their life that slightest bit easier, and help them on their way to finding a cure. 
People like Mason and thousands of others need our help. With no current cure, everyday is a treasured gift to people living with E.B, and DEBRA along with their family and friends support, is their main source of survival, so please, support Mason and others like him out there, by giving to DEBRA. 

All donations appreciated xxx