Thanks for taking the time to visit my JustGiving page.

I am fundraising for Debra as I am an EB sufferer myself (EBS localised-feet only) and although my condition is not as severe or life threatening as others are, I do know how painful physically and mentally it is to live with EB and I am even more determined to raise money to help find a cure in my life time. It is particularly important to support this charity as the condition is not well known at all, researchers are close to finding are cure and there is no government funding.
I hope to raise money through running events, long distance cycles and other ways such as organising collections, concerts and car washes.Support will mean a lot to me as I have only a mild form of EB and I am horrified to think how more severe sufferers have to live - it's a very cruel condition, very painful with children in constant agony and in some cases dying young.

Any support at all will be helpful thank you.

"£15 buys a special needs feeder system. Babies with severe forms of EB have very sore blistered mouths and are unable to feed using a regualr teat."
"£25 could pay for one hour of research to bring us closer to finding an effective treatment for EB"
"£30 pays for a child to have a special day out with EB care teams and EB children"
"£50 could fund two additional home visits by the EB team. Providing care at home is critical for those who find it difficult to travel"
"£100 could pay for an essential changing unit to make it practical and efficient for carers to reach the many different types of dressings and creams"
"£300 means a family could enjoy a week's holiday together in one of DEBRAs specially adapted holiday homes"