Thanks for taking the time to visit my JustGiving page.

At the age of 8 I was diagnosed with the incurable Skin Condition Epidermolysis Bullosa. A skin blistering condition which makes the skin so fragile the slightest friction can cause blistering and shearing. So little was known about the disorder that I was sent on my way and left to get on with things. 

Life was not easy for me. I missed out on a lot of things because walking any distance was difficult and would cause blistering. I also missed out on lots of school and had trouble wearing any type of shoe.

After I left school my condition started to ease a little but then after a family holiday ended in me being unable to walk at all and spoiling the holiday for my children, I decided to look in to EB anymore. What I found shocked me.

I found that there were three main types of EB, EB Simplex (which I have), Dystrophic EB and Junctional Eb. After looking into it more I found out how serious this condition could be and that in the most severe type it was commonly fatal in infancy.

One day when I woke up and found all my hands were blistered I started searching for help. I came across Debra.org.uk and called them. They put me in touch with a nurse who was very helpful and came to see me the next week. She put me in touch wtih a consultant who saw me and I am now receiving the care and support I needed.

Debra rely on donations to offer this support to people and families who have to deal with the harsh reality of EB every single day. So please please give whatever you can.

Thank you for taking the time to read this.

Leanne xx