Story
My beautiful friend Millie lost her precious baby boy Otto at just 4 months old to a rare genetic metabolic condition, affecting just a handful of children. Millie is one of the best people I know! So lovely, happy, thoughtful, positive and wise! She’s been a great friend to me over the time we’ve known each other. We got to celebrate bringing Otto into this world at her baby shower but sadly I never got to meet the little fella.
I am running the Royal Parks half marathon in his honour and raising money for The Lily Foundation, the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe. Their mission is to improve the lives of people affected by mitochondrial diseases, while working towards a future where mitochondrial diseases can be effectively treated or cured.
I am on a mission to support Millie and Tony continue raising awareness of such an unknown and underfunded condition in the hope to find a cure.
I would be extremely grateful for any spare pennies you would be able share to support.
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