Laura Brookes

Laura's Snowdon challenge

Fundraising for The Butterfly AVM Charity Limited
£720
raised of £500 target
Donations cannot currently be made to this page
Snowdon, 14 September 2019
We fund medical research & raise awareness to improve the lives of AVM sufferers

Story

Thanks for taking the time to visit my JustGiving page.

In January 2018, my Niece, Eve was diagnosed with an AVM on the brain. 

An arteriovenous malformation is the term used to describe a tangle of blood vessels with abnormal connections between arteries and veins. An AVM can occur anywhere in the body but brain and spinal AVMs present substantial risks when they bleed. This condition only affects around 1% of the population! 

The condition causes Eve to suffer severe headaches, nausea and as of last week she suffered her first seizure. She is 14yrs old. In July 2018, Eve underwent gamma knife surgery. A non-invasive radiation procedure to try to slow and gradually clog the flow of blood to the AVM. This can take a number of years to even know if it was successful and the risks in the meantime, remain. 

Eve has had to change her lifestyle at just 14yrs old. She cannot risk her blood pressure being raised for the risk of a bleed and yet she takes it on the chin and continues with the determination and courage that you would not expect from a young girl. We are incredibly proud of her. 

The Butterfly Avm charity is the first of its kind to fund the awareness and research of this incredibly rare condition. 

I am taking on the challenge of Snowdon. Something that terrifies me. I am not the fittest of people, 3 flights of stairs at work leaves me breathless but I want to do this to raise money for this charity so close to My heart. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Thank you for your support. 

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About the charity

The Butterfly AVM Charity was created to raise funds for much needed Research into finding a cure for Arteriovenous malformations. These are abnormal connections between arteries and veins anywhere in your body. We also want to raise awareness and support for sufferers & their families .

Donation summary

Total raised
£720.00
+ £153.75 Gift Aid
Online donations
£720.00
Offline donations
£0.00

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