Laura Bland

Laura's Ride for Joseph

Fundraising for MECP2 Duplication UK
CA$425
raised of CA$250 target
Donations cannot currently be made to this page
Laura's Ride for Joseph, 26 September 2015
MECP2 Duplication UK

Verified by JustGiving

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We support MECP2 families enabling them to grow and develop and cope with MECP2

Story

Thanks for taking the time to visit my JustGiving page.

My cousin's son, Joseph, suffers from a genetic condition called MECP2 Duplication.  This syndrome is caused by a genetic change in which there is an extra copy of the MECP2 gene in each cell. 
There are only approximately 120 boys affected by this syndrome so it is very rare.  This is why I want to raise as much funds and awareness as I can.
I am unable to help Becky, Neal and the family physically since I am not in the UK but wanted to do something to help.  
It will mean the world to not only me, but to Joseph and MECP2UK charity if you were able to donate.

You can find out more about Mecp2 Duplication UK by visiting

http://mecp2duplicationuk.org.uk/

Thank you

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About the charity

MECP2 Duplication UK

Verified by JustGiving

RCN SC044781
We are a parent-led charity providing a diverse range of support for families living with MECP2 Duplication Syndrome. Support takes the form of information, advice and social gatherings. We help ease the additional pressures families face. We can help with essential items in the form of grants.

Donation summary

Total raised
CA$424.44
+ CA$24.19 Gift Aid
Online donations
CA$424.44
Offline donations
CA$0.00

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