In August 2017 our darling Fifi was diagnosed out of the blue with a DIPG, a brain tumour. To be told that no child had ever survived this cancer is every parents worst nightmare . We were told there is no cure, no effective treatment, nothing can be done.

This harrowing news is what every family whose child is diagnosed with a DIPG will be told. Despite the world's advances in tackling cancer and tumours, along with the improvement of survival rates in the last few decades, the understanding and brutal outcome of a child's DIPG diagnosis has remained at a standstill since mid-last century. In fact, brain tumours claim more lives than any other childhood cancer, accounting for more than a third of all childhood cancer deaths.

Just two weeks after her diagnosis, Fifi suffered a major brain haemorrhage that left her in a coma and fighting for her life. Yet, against all the odds, our brave girl remained with us and was cared for at home, surrounded by the family who adore her. We will always be thankful for that time - the chance to tell our amazing daughter just how much we loved her. However, on 18 January 2018, just five months after her diagnosis, our beautiful Fifi passed away. We are devastated and heartbroken, life will never be the same and we will miss her every single day.

Our Fifi was a fighter, so, in her memory we've set-up the “Fifi fund" with The Brain Tumour Charity in the hope that one day other parents will never have to hear the same words we did.  Its aim is to improve research into DIPG by raising funds. We are committed to supporting this research until we can ensure that every child who receives a DIPG diagnosis can go on to live a long and full life. Your donations will help us achieve this and to all of you that support us, thank you.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.