Kyle Blackman

Brighton Marathon 2023

Fundraising for Action Duchenne
£1,115
raised of £1,000 target
Donations cannot currently be made to this page
Event: Brighton Marathon 2023, on 2 April 2023
In memory of Sean Blackman
Funding support projects to help young people living with Duchenne muscular dystrophy as they transition to adult life.

Story

I'm turning 30 this year and I thought it would be a great opportunity to challenge myself by running my first marathon and help raise some money for a great charity.

My cousin Sean suddenly passed away 4 years ago this year, just days before his 22nd birthday. Sean suffered with Duchenne Muscular Dystrophy which is a rare genetic condition caused by mutations in the dystrophin gene, which makes muscles more susceptible to damage and leads to muscle wasting over time. Action Duchenne provided fantastic support for Sean throughout his life.

Please help me to support the life-changing work of Action Duchenne. Your donation will help fund projects which will empower young people living with the rare muscle-wasting condition, Duchenne muscular dystrophy. People living with Duchenne muscular dystrophy experience progressive muscle weakness and typically need to use a powered wheelchair from their early teens. The heart and breathing muscles are eventually affected and most will require a ventilator in their twenties; life expectancy is around 30 years but has improved with palliative care developments. There is no cure. Thank you for your donation to help power Action Duchenne's vital work.

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About the campaign

Funding support projects to help young people living with Duchenne muscular dystrophy as they transition to adult life.

About the charity

Action Duchenne

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We have a very clear vision: a world where people's lives are no longer limited by Duchenne muscular dystrophy.

Donation summary

Total raised
£1,115.00
+ £205.00 Gift Aid
Online donations
£1,075.00
Offline donations
£40.00

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