Story
I'm turning 30 this year and I thought it would be a great opportunity to challenge myself by running my first marathon and help raise some money for a great charity.
My cousin Sean suddenly passed away 4 years ago this year, just days before his 22nd birthday. Sean suffered with Duchenne Muscular Dystrophy which is a rare genetic condition caused by mutations in the dystrophin gene, which makes muscles more susceptible to damage and leads to muscle wasting over time. Action Duchenne provided fantastic support for Sean throughout his life.
Please help me to support the life-changing work of Action Duchenne. Your donation will help fund projects which will empower young people living with the rare muscle-wasting condition, Duchenne muscular dystrophy. People living with Duchenne muscular dystrophy experience progressive muscle weakness and typically need to use a powered wheelchair from their early teens. The heart and breathing muscles are eventually affected and most will require a ventilator in their twenties; life expectancy is around 30 years but has improved with palliative care developments. There is no cure. Thank you for your donation to help power Action Duchenne's vital work.