Kristin Froud

Walking for Kai

Fundraising for Joseph's Goal
£180
raised of £500 target
Donations cannot currently be made to this page
Bazaarvoice Thames Walk for Kai, 24 September 2017
Joseph's Goal

Verified by JustGiving

RCN 1151548

Story

Thanks for taking the time to visit my JustGiving page.

I want to tell you a little story about a special little boy called Kai and hope you can help!  Mikaere Grant Hulance (Kai) was born last October with a Nonketotic Hyperglycinemia (NKH).  His parents Elly
and Sam are very good friends of mine and I want to help them drive awareness and help fund critical research for NKH. 

It’s a rare metabolic disease with no cure and limited treatment
options. Only 500 children live with the disease worldwide and the one and only NKH Charity - Joseph's Goal helps fund Professor Nick Greene at UCL/Great Ormond St Hospital who needs to raise £90,000 for research in order to provide any chance of finding a treatment or cure. He is developing gene therapy options to provide longer term treatment and so far, his research has had promising results.

So - next weekend – I am going to join my friends for part of their 78
mile walk around the Thames – and you can help!  Please consider sponsoring a mile on our trek or just donating a few quid for an extremely worthy cause!  If we manage to get all the miles sponsored – Sam (Kai’s dad) is going to dress up as a Bee - the unofficial symbol of NKH.

Visit BV's page here:  https://www.justgiving.com/fundraising/bazaarvoice-thames-walk

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About the charity

Joseph's Goal

Verified by JustGiving

RCN 1151548
Joseph Michael Kendrick is 15 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Donation summary

Total raised
£180.00
+ £37.50 Gift Aid
Online donations
£180.00
Offline donations
£0.00

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