Thanks for taking the time to visit our JustGiving page.

We have set up this page in loving memory of Kodi Fry, who sadly passed away on the 15th August 2021 aged 9. Kodi suffered from Pearson's Syndrome, an extremely rare Mitochondrial Disease which has less then 100 recorded cases world-wide, and deriving from this, Chronic Kidney Disease.Through everything he went through, Kodi never let it get him down and was without a doubt the light of every room he ever went into. From his funny dancing to his singing (screaming!) he never let anything stop him. 

Kodi loved school, going swimming, taking funny pictures, sitting in boxes (we know, odd right?), laughing, playing, quaver crisps, angel cakes and had an incredible talent at hearing a chocolate packet open from wherever he was in the house. We can't even try and put into words, how much, despite everything, Kodi was the happiest boy and brightened the life of anyone who met him. 

Throughout Kodi's life, and now even though he has gone, both Kodi and our family have received incredible support from Sebastian's Action Trust, and this is why we are trying to raise money to give back a little of what we can to say Thank You for the support we have received. On top of that, we would love to do anything we can to help them in supporting other families who need it.  

None of this even begins to touch on how incredible Kodi was, or how amazing the work Sebastian's Action Trust does is, but as Kodi's sister - take my word for it, no one has ever walked this earth as beautiful as him, and SAT deserve everything we can give them.  

Thank you for even visiting this page, and anything you can donate will go a long way. Thank you all and keep our little warrior in your thoughts. 

Kodi Fry 20.02.2012-15.08.2021

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