Kirsty's Walking mount snowdon

Kirsty Woodward is raising money for Brittle Bone Society (BBS)
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Walking mount snowdon · 5 August 2017

The Brittle Bone Society provides support for people affected by the rare, and painful bone condition Osteogenesis Imperfecta. It provides specialist advice, support and equipment to people with the condition, their families and carers, medical and other professionals.

Story

Me, Adam and a few friends are walking mount snowdon in August to raise money for an amazing charity that most of you will know is close to our hearts... 

Sadie was born with a condition called osteogenesis Imperfecta (OI) it is a genetic bone disorder characterized by fragile bones that break easily. It is also known as 'brittle bones' The condition can vary quite drastically from person to person so a classification system has been identified to describe the different types of OI which is commonly used to help describe how severely a person with OI is affected. For example, a person may have just a few or as many as several hundred fractures in a lifetime. As well as frequent fractured bones, people with OI often have muscle weakness, hearing loss, fatigue, joint laxity, curved bones, scoliosis, blue sclerae, dentinogenesis imperfecta (brittle teeth), and short stature amongst other medical problems.

Sadie is thought to have type 1 (genetic testing is yet to confirm) in her 2 little years she has had 4 broken legs, elbow, big toe and has compression fractures to her spine. She has bisphosphonate treatment every 2 months at Birmingham children's hospital. Type 1 is the mildest form of OI. Children of other types are more severely affected. And that is where this wonderful charity comes in. We hope to raise awareness for OI and obviously lots of money too! Please donate and share Sadies story 💕

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Donation summary

Total
£1,786.50
+ £286.25 Gift Aid
Online
£1,786.50
Offline
£0.00

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