Last October, full of beer and bravado, I entered the London Marathon ballot, buoyed on by the statistical unlikelihood of getting a place. And, guess what…

So, now much of the pain of training is behind me, I have decided to rustle up some support for a small charity: Hope for Hypothalamic Hamartomas, run by my lovely friend and colleague Emma Nott. 

Emma’s son Charlie has this condition, causing epilepsy, and theirs has been a very rocky road to obtaining the correct diagnosis and appropriate treatment. In 2009, Emma and three other mothers set up the charity in order to support patients and caregivers, to spread awareness of the condition amongst medical professionals and to promote research into this rare but often devastating condition, and that of other focal epilepsies. 

READ more about Emma, Charlie and Hope for HH in this blog: 

A rare tumour and epilepsy - Hypothalamic Hamartoma — Epilepsy Sparks

READ more about Hope for HH below, and on the Hope for HH website: https://www.hopeforhh.org/

The charity is entirely volunteer run, and every penny raised is spent on research or patient support. This is a rare opportunity for me to fundraise for Hope for HH, and for you to contribute to the valuable work that they do.   

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.