Jacqueline Webber

KFA Test Team Walk

Fundraising for Barth Syndrome UK
£863
raised of £400 target
Donations cannot currently be made to this page
KFA Test Team Walk, 9 September 2018
Barth Syndrome UK

Verified by JustGiving

RCN 1181830
We support families & fund research to improve the lives of affected people

Story

Thanks for taking the time to visit my JustGiving page.

Most people will not have heard of this small charity as this condition is rare. But for those of us at KFA it had a profound effect on our lives, when Sebastian, the son of one of our colleagues, lost his fight against this condition at the age of 2. We were all heartbroken.

The Test Team at KFA started to do an annual charity walk last year, and we choose a cause that has real meaning to us. This year it is Barth Syndrome.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Thank you for your support

Share this story

Help Jacqueline Webber

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Barth Syndrome UK

Verified by JustGiving

RCN 1181830
Barth syndrome is a complex and life threatening genetic condition that affects the heart, immune system and growth. Our children and adults struggle with extreme fatigue, sudden heart arrhythmias and recurring infections. Help us to fund research and to find a cure for this devastating condition.

Donation summary

Total raised
£863.00
+ £167.50 Gift Aid
Online donations
£863.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.