Story
Im running the Chester Marathon on the 2nd October 2022 to help Florence get the therapy she needs.
Florence is 22 Months old, she has a very rare genetic condition called Trisomy 8 mosaicism syndrome and a brain Condition called Agenesis of the Corpus Callosum (ACC) she was diagnosed Pre natal. These combined have resulted In the recent diagnosis of Scoliosis, along with many other medical issues that she has to battle with daily. Florence is developmentally delayed, she cannot sit unaided, crawl, walk or talk…
Florence has been in Early intervention from a very young age, the NHS have been great however they are so stretched they cannot cover or give Florence all the therapy / equipment that she needs, all we want is for her to have the best quality of life, have the access to things that she needs / deserves to help her develop & be as independent as possible to fit in with her peers.