Kevin Barnes

Kevin's Lands End to John O'Groats

Fundraising for University College London Hospitals Charity UK
£2,409
raised of £1,100 target
Donations cannot currently be made to this page
The Cure CJD campaign has been set up by a group of individuals, personally affected by the disease, to support the work of researchers & doctors at the MRC Prion Unit at UCL and NHS National Prion Clinic at UCLH. We are a fund within UCLH Charity.

Story

Support us to find a cure for Prion disease. Prions are a group of degenerative diseases, some of the most common are Creutzfeldt-Jakob disease (CJD) and Gerstmann-Straussler-Scheinker Syndrome (GSSS). There is currently no cure, but every day scientists and doctors are getting closer to finding a treatment. We aim to raise funds to support the use of an antibody drug developed for the treatment of patients with CJD. The first patient was treated at UCLH in October 2018. Who knows, the research could also help with other more widely known diseases with similar symptoms.

My close friends families and future generations are at risk from this hereditary disease and there is a stark 50/50 chance of passing on the gene. The next graduate receiving funding may just be the one to crack the code which is behind this despicable affliction. Prion is life shortening and I am choosing to struggle for just 2 weeks in the hope that we can help others that have no choice with their suffering and their struggle is for a lot longer than a mere 2 weeks ! 

I will have my 60th coming of age just before departure from Lands End and feel obliged not to waste my good fortune of health and fitness, though I may wish I had taken on this challenge 30 years ago by the time we reach John O'Groats.

Thank you for supporting me, my friends and a very worthy charity x


About the campaign

The Cure CJD campaign has been set up by a group of individuals, personally affected by the disease, to support the work of researchers & doctors at the MRC Prion Unit at UCL and NHS National Prion Clinic at UCLH. We are a fund within UCLH Charity.

About the charity

We're the official charity supporting patients, staff and research at University College London Hospitals (UCLH) NHS Foundation Trust. We focus on four main areas. Supporting patient care Training and developing staff Environment and equipment Advancing research.

Donation summary

Total raised
£2,408.65
+ £202.50 Gift Aid
Online donations
£2,408.65
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.