My sister Kennedy is fighting every day to live with this devastating condition, Spinal Muscular Atrophy. This affects her movement from the neck down, but not her intelligence or sense of humour.  We also sadly lost my brother Karter to this condition when he was just a baby. 

It would mean so much if you could donate anything you can, every little helps and will help the charity to continue their vital work supporting individuals and families such as mine affected by SMA !