Kelly Pengelly

Half marathon for Perthes Disease

Fundraising for Steps
£365
raised of £300 target
Donations cannot currently be made to this page
Exeter's Great West Run 2021, 23 May 2021
Do it for Perthes
Campaign by Steps (RCN 1094343)
Help us to raise awareness of Perthes Disease. Unfortunately medical agreement on the best way to treat Perthes has not yet been reached. We need your help to fund more research and support families and adults impacted by this childhood condition.

Story

Perthes disease or Legg-Calve-Perthes disease as it is sometimes known, is a rare childhood condition that affects the hip. The blood supply to the hip bone is disrupted, causing bone cells to die, which erodes the hip and causes pain in the process. Unfortunately medical agreement on the best way to treat Perthes has not yet been reached. It is treated in various ways but pain management remains a key issues faced by many children. At times, parents are told to "wait and see" to enable the doctors to assess how to best treat their child's condition. As the condition is not well known, it could occur that the child is not correctly diagnosed with Perthes disease leaving the hip to erode resulting in an odd shape. The effects of Perthes into adulthood are still very much unknown. Doctors have very limited information on how many adults require a hip replacement (if any) and if the disease has had long term consequences on their daily activities.

Share this story

Help Kelly Pengelly

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the campaign

Help us to raise awareness of Perthes Disease. Unfortunately medical agreement on the best way to treat Perthes has not yet been reached. We need your help to fund more research and support families and adults impacted by this childhood condition.

About the charity

Steps

Verified by JustGiving

RCN 1094343
Steps is the leading charity working for all those whose lives are affected by childhood lower limb conditions. Everything we do is about valuing and supporting individuals, families and carers affected by conditions which have an impact on the legs, hips or feet.

Donation summary

Total raised
£365.00
+ £53.75 Gift Aid
Online donations
£365.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.