Katy Irving

Katy's 30 Park Runs For Kai

Fundraising for Joseph's Goal
£647
raised of £600 target
Donations cannot currently be made to this page
30 Park Runs For Kai, 13 February 2019
Joseph's Goal

Verified by JustGiving

RCN 1151548

Story

Thanks for taking the time to visit my JustGiving page.  My new year's resolution is to run 30 x 5k parkruns (and volunteering at 2) in 2019. Although this is a personal goal, I am raising money for Joseph's Goal in honour of our dear friends Elly, Sam and their son Mikaere. Mikaere (Kai) is a beautiful 2 year old who has a rare and terminal glycine metabolism disorder Nonketotic Hyperglycinemia (NKH) that means he has complex medical needs and severe developmental delay; its a terrible disorder that is under served by specialists, lacks treatments, and Elly has had to give up her career become his full time carer.

Please consider donating £1 per run to support Joseph's Goal for #teammikaere. If only 20 of you do this we'll make our goal and the funds will go to NKH research

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About the charity

Joseph's Goal

Verified by JustGiving

RCN 1151548
Joseph Michael Kendrick is 15 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Donation summary

Total raised
£646.53
+ £99.48 Gift Aid
Online donations
£646.53
Offline donations
£0.00

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