Story
Hello everyone, some of yous are aware by now that our wee girl Miley was diagnosed with collagen 6 congenital muscular dystrophy also known as Ulrich which causes weakness in her muscles and could cause issues with her breathing eating and walking however she is beating all odds at the moment and getting stronger and stronger each day
So this year instead of an annual day out me and my bestie have decided to do the kilt walk to help raise money and awareness.
Miley's journey is found within Miley magical march if you would like to have a wee read 😌
Please dig deep into your pockets, we would really appreciate it
Our family will also be hosting various fundraising events so keep your eyes peeled for more
Muscular Dystrophy UK is the charity for 111,000 people living with muscle-wasting conditions. They are making a difference today, providing vital information and support to help people live as independently as possible. They are making a difference for tomorrow, accelerating progress in research and driving the campaign for access to emerging treatments.