Story
Thanks for taking the time to visit my JustGiving page.
I lost my uncle to motor neurone disease. We were told he should be with us for two years at the time of his diagnosis, but tragically he only made it to 6 months.
MND does not discriminate, there is no known cause or cure. A person diagnosed with Motor Neurone Disease typically is given 5 years to live at the point of diagnosis, but on average this disease takes lives after just 2 years past the point of diagnosis.
So, despite my issues with mobility, this wasn’t a challenge I wanted to sit out on. So I aim to walk, roll 👩🏼🦽, or pedal my way to 100Km. It may take me a little longer than May, but I will reach 100k! All donations are going directly to the Darby Rimmer MND Foundation. We are fighting for research, for more understanding of motor neurone disease, and hopefully one day we will have a cure.
A big thank you to all who donated over the last 2 years, it really means a lot!
If anyone wishes to donate through me or any of the other wonderful people pushing themselves for this cause, please do so. And if you’re unable to donate at this time, please share the pages so we can reach as many people as possible. Sharing is just as important as donating.
I’d also like to share my sincerest condolences with the foundation over the recent passing of Chris Rimmer, one of the founders. And of course my thoughts are with Chris’s family and loved ones at this time. We won’t give up.
- Katie
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Motor Neurone Disease (MND) is a neurological condition which affects the nerves in the brain and spinal cord. MND affects a person's arms and legs resulting in the inability to do basic things like wash, feed and dress yourself. It affects your ability to swallow which leads to the need of a feeding tube. It compromises your voice which means communicating is difficult. Breathing muscles are also affected, which leaves you relying on a ventilator to breathe. All these symptoms occur whilst your mind is unaffected. The average life expectancy is just 2-5 years from the onset of symptoms with 1/3 of people diagnosed dying within 1.5 - 2 years. There is no known cause of MND and there is no cure or effective treatment, it's always fatal. There is a serious lack of awareness and more importantly funding.
The Darby Rimmer Foundation aims to raise awareness of the disease whilst fundraising to support those effected and fund much needed research. There is a lot of research going on and the signs are promising for treatments in the future.Follow our progress on social media, look for the #100kinMay and #AttackMND.
Thank you for being part of the team and we hope you enjoy the event.Team 100K in May
Former Liverpool, Bradford City and Bolton Wanderers footballer Stephen Darby and close friend and British Forces Veteran Chris Rimmer have partnered together to launch the Darby Rimmer MND Foundation. Stephen and Chris both have Motor Neurone Disease and have created a Foundation to create awareness of MND, to fund and assist research into the illness with the quest of finding a cure for the illness, to raise funds and offer grants to those with MND, as well as creating a network to help provide information and emotional support network for those diagnosed with the disease.