Thanks for taking the time to visit my JustGiving page.

At 18 months old our beautiful boy Jake began having seizures. After many weeks at Great Ormond Street he was finally diagnosed in July 2015 with a rare mitochondrial condition called Alpers.

We were told it was life-limiting but had no idea of how much time we had with him so tried to make every day count. In between hospital visits he was reasonably well and remained our ever happy, loving little boy with a wonderful cheeky sense of humour.

Devastatingly Jake passed away a year later aged 2 and half having fought a brave fight with a battle he could never win. He slipped away peacefully in his sleep on 28th May 2016 held tightly by his devoted Mummy and Daddy.

We want to support the Lily Foundation this Christmas for their ongoing research into this devastating disease. Hopefully, one day, there will be a cure to stop other little ones being robbed of their future and stop parents going through the heartbreak we continue to go through.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.