#TeamHDA 

I am running the 2023 London marathon for every person with HD, every family struggling with the crippling effects - life is never the same. 

I am one of those families, my Grandad passed away with HD, my Dad has been suffering for nearly 20 years and my auntie a few years less. 

Now myself and my sister have been tested and we will also get this in our life time, my brother is yet to be tested but also has a 50/50 chance. Onset is usually from 30+ and I am now 32 trying to live the best life I can before things change, before my life changes. 

HD is a horrible disease, I won’t go in to too much detail you can check HDA website if you want more info, but in short it’s a neurological disease that kills off your brain cells one by one, it’s a slow, excruciating illness which causes pain for every single member of the family not just the sufferer.

I am part of the Queens hospital neurology department and my family do all the trials we can, together we want to find something, a cure, a prolonged onset - anything to stop this disease attacking more families. 

No one in my family has ever asked for sympathy, it’s life and life hits us in different ways, all we want is to try to do the best we can and try to get ourselves involved as much as we can. We are strong family and we do this with great strength, love and courage. 

Anyone who donates and sponsors me to do this - please know you are in my heart forever, this will be another huge challenge for me but my determination is powerful! I’ve got this guys with your help! Thank you! 

Katie x