On what I hope is a not too hot May bank holiday Monday I’m going to be running my first ever event , the Vitality 10000 to help the Lily Foundation support families effected by mitochondrial disease and find a cure - all in memory of my gorgeous nephew Jacob Wright who lost his fight to Mito aged 16 months. This cruel debilitating condition took so much from Jacob. It primarily affected his brain, killing his brain cells, taking away his ability to hold up his own head, hold his toys, his laugh, his smile and ultimately his life.
Everyday in the U.K. a child is born who will develop Mitochondrial disease. Symptoms include seizures, strokes, blindness, hearing loss, painful dystonia, reduced mobility and organ failure. The condition is life limiting yet there are very few treatments and no cure.

I until last year had never run before and this is going to be a challenge, but I’m proud to be doing this for Jacob along  side his mum and my sister Claire to stop it taking precious lives - the amazing Doctors and researchers are getting closer but not close enough - and by supporting Me with a small donation we will get there faster.
For Jacob and all those effected please help us  make a difference.

Thank you

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope.