Thanks for taking the time to visit my JustGiving page.

As you may be aware Ellis our 12 year old son was diagnosed with Duchenne Muscular Dystrophy as a baby, we were told then that a cure was within grasp yet 12 years on & still there is no effective treatment or cure.

Action Duchenne supports families like Ours and also contributes to much needed research  in the hope that a cure or treatment can be found. Five years ago Ellis took part in a clinical trial part funded by Action Duchenne, sadly the UK goverment would no longer support the research and the trial closed in the UK but there are still lots of other avenues of research.which are supported.

Duchenne Muscular Dystrophy is a cruel diseases that reduces the ability of the muscle to function leading to a loss of mobility and life expectancy. 

Ellis is already severely affected by Duchenne and can only walk a short distance without using his Powered chair, he can no longer stand from a sitting position with out help.

Please help by donating what you can and don't forget to Gift aid it, every penny helps us to fight this cruel disease.  

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.