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Duchenne muscular dystrophy is a severe muscle wasting condition. People living with Duchenne typically need to use a powered wheelchair from their early teens. Life expectancy is around 30 years, there is no cure.I am raising money for Action Duchenne, an amazing UK charity which spends 87p in every £1 they raise on ground-breaking Duchenne research, world-class support for Duchenne families, and cutting edge science education.Please donate to help Action Duchenne continue their vital work.Thank you for your support.
It's that time of year where I take to the icy waters on Boxing Day in aid of Action Duchenne. Above gives a brief description of what Duchenne MD is and this is a charity that our family has supported for more than 10 years. A close friend has a son who is affected and this is our way to raise awareness and hopefully a bit of money to aid vital research and support for all affected by this cruel condition. I will be supported by Paul and Joe and a couple of other family members ( in fancy dress). Watch this space!!! Thank you taking the time to read and if you can please share so that we can raise as much awareness and cash as possible.