Please join me on 10 February for a virtual quiz and a talk about Angelman Syndrome.

At the session, you will learn about what Angelman Syndrome is, what is the current state of research and what you can do to help. 

This event is part of a wider initiative by FAST UK to celebrate International Angelman Day (IAD). It's particularly important to me because my daughter was diagnosed with Angelman Syndrome in March last year. Since then, I and my husband do anything we can to raise awareness and funds towards meaningful therapeutics for Angelman Syndrome. There is so much hope for a cure, but it's only possible with your support. 

Please bring a hot cup of coffee/ tea to the zoom session and consider wearing something blue! 

Feel free to donate before, during, and after the session - any donation is massively appreciated by me and the whole Angelman Syndrome community. 

Looking forward to seeing you all very soon,

Irina

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International Angelman Day was started by two AS parents in 2012 and engaged 31 Angelman syndrome organisations from around the world to join their efforts. Today, IAD has grown to over 50 AS organisations participating worldwide. February 15th is significant because February is Rare Disease Month and the 15th refers to the 15th chromosome, which is the chromosome impacted by Angelman syndrome.

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If you haven't seen it yet, we've shared our story last year here:

https://www.justgiving.com/fundraising/karaseva