You are probably thinking, what on earth is Dystonia?! In a nutshell it is a neurological movement disorder that presents itself as uncontrollable muscle spasms triggered by incorrect signals from the brain, which are often painful. It is usually a lifelong condition, currently with no cure, minimal treatment and quite often an unknown cause. This is why it is so important to raise money to help fund important research. 

We have chosen this charity as our Mum, Susie, is currently living with neck (cervical) dystonia. Some days the pain and discomfort is more manageable than others, but there is never really any complete relief from the disorder. It can be a lonely place when others don’t understand what Dystonia is and the implications it has on everyday life, but by spreading awareness and raising vital funds, hopefully this can change. 

We have set ourselves the goal of walking or running at least 5k every day in May; it will be all about getting out for a walk regardless of how we are feeling or what the weather is doing. Hopefully our four legged friends, Blaze and Margo, will also be up for the challenge.

Any donations will be hugely, hugely appreciated. 

Jo & Vic 

(Over 100,000 people in the UK are affected by Dystonia, which is a neurological condition presenting with uncontrollable and sometimes painful muscle spasms. Dystonia is a lifelong condition that affects both adults and children that currently has no cure. Dystonia UK is children and adults with dystonia, carers and clinicians, fundraisers and families, medical professionals and our amazing members and supporters, all working side by side. Through our fundraisers and supporters (yes that is you!), we can carry on our mission, so thank you!)