Julie Krcmaric

Raring to Go for CHI

Fundraising for Congenital Hyperinsulinism International
US$1,000
raised of US$1,250 target
Donations cannot currently be made to this page
Million Dollar Bike Ride, 2 June 2019
Join us in raising research funds for new treatments for congenital hyperinsulinism (HI).

Story

On June 25, 2015 my daughter Emmeline was born. Her blood sugar at birth was 10 (typically should be over 60). Emmeline has a large list of complex medical issues but in that first week, we struggled to keep Emmeline's blood sugar above 40. By day 6ish, an endocrinologist came in and diagnosed Emmeline with Congenital Hyperinsulinism. We started her on medications and her sugar quickly began to rise into normal ranges. We spent the next 6 months adjusting medications and doses, getting a gastronomy tube (g tube or feeding tube), then getting a J tube (feeding tube that bypasses her stomach), and we moved across the country to seek treatment at Children's Hospital of Philadelphia, one of very few hyperinsulinism centers in the world. Emmeline is now almost 4 years old and we still have to check her sugar regularly and worry about lows, especially when she is sick.

Please help us to raise research funds for new treatments for congenital hyperinsulinism (HI). HI is a life-threatening disorder that causes dangerously low blood sugar levels. Prolonged or severe low blood sugar can cause seizures, brain damage, and even death. New Treatments are needed! Your fundraising dollars will be used for an innovative, pre-clinical or clinical studies designed to improve the diagnosis, therapy, or quality of life for those affected by congenital hyperinsulinism. The first $30,000 we raise is matched by the University of Pennsylvania, our partner in funding research. Thanks to all of you, CHI has raised over $381,000 for congenital hyperinsulinism research.

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About the campaign

Join us in raising research funds for new treatments for congenital hyperinsulinism (HI).

About the charity

Congenital Hyperinsulinism International (CHI) is a leading nonprofit dedicated to improving the lives of babies, children, and adults living with congenital hyperinsulinism (HI).

Donation summary

Total raised
US$1,000.00
Online donations
US$1,000.00
Offline donations
US$0.00

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