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My son, Gregory, was diagnosed with RTS when he was 14. He is now 19 and has surprised us by how well he has developed despite the challenges that he faces. RTS is an extremely rare chromosome disorder and those who have it face a number of cognitive and physical challenges. The charity offers support for families affected by RTS. It helps raise awareness of RTS amongst the medical community and the general public. In order to support families they provide information about RTS which is especially useful to families who have just received a diagnosis, arrange social activities, provide updates on medical and policy developments as well as arranging family get-togethers and conferences. The charity is also co-funding a PhD student with Aston University to carry out further research into important aspects of RTS.

My aim is to raise as much as possible, so please share this with your family and friends

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