One month before our son Zachary was born, we were told by a consultant that they were unsure of the quality of life our unborn child would have, due to irregular measurements in the scan. In October 2019, he came into the world and after a genetics test we found out that he was born with achondroplasia (the most common form of dwarfism, a genetic mutation that affects 1 in 25,000). We were referred to the Evelina, who have a specialist unit for children with the condition. Meeting the team there in his early months was such an encouragement. They covered every medical area you could consider and went above and beyond to support him (and us!). Zachary is doing really well now and thriving, partly due to the work of the Evelina, who do so much to look after thousands of children and families like ours. I would love to raise funds to help them continue their essential work, including organising a couple of gigs with my 12-piece function band. I need to raise a minimum of £2500 but would love to get £100 for every month that Zachary will have been alive by the time of the marathon (which is £5600!), so please consider supporting me.

Every year more than 103,000 children and young people experience the wonderful warmth and care of Evelina London, which is part of Guy's and St Thomas' NHS Foundation Trust. They see first-hand the care and passion of the Evelina London team who are exploring new approaches and creating ground-breaking care for children and young people with a range of medical needs. Thank you so much for your support!