The beautiful Noah lost his battle to Leighs Disease on 10th September 2020 at just 2 years old. Noah was an amazing character with a huge heart that suffered for far longer than anyone knew in his brave and incredible battle with this horrible disease, but with more fight than seems possible, he carried on with an unwavering enthusiasm for every day. In his memory friends and family are joining together to support The Lily Foundation in their battle to find a cure and in their ongoing support of families effected. Everyday in the UK a child is born who will develop the disease that currently has no treatment or cure. I am taking on this challenge to try to change this inspired by Noah. Please donate if you can and help me make a difference. Thank you