Joseph's Malin2Mizen Cycle4CF page

Malin2Mizen Cycle4CF · 14 September 2023
Hi Folks,
In Sept 2021 I embarked on a journey - the malin2mizen cycle4CF from Malin Head in Donegal to Mizen Head in Cork, 640km over four days with an amazing group of cyclists, support crew, friends and family. This year I've decided to take on the challenge again in aid of Cystic Fibrosis Ireland.
CF Ireland is a great resource for people living with CF. They provide information and support to patients and families, all monies raised directly support people living with CF through grant programs, funding research to better understand the condition as well as lobbying the government and drug companies to make medicines and therapies accessible for those living with this condition.
In October ‘18 our daughter was diagnosed with Cystic Fibrosis. Although it was a shock, the support we received and the resources that were made available to us were fantastic. Lily, our daughter has been lucky enough to be started on some of the new drug treatments. While these new drug therapies will hopefully be life changing, they are not a cure. As research progresses we hope the range of drug therapies will continue to expand so those who are not currently eligible to start on one of these medicines will be able to do so in the future.
So.. I’m cycling to raise awareness of Cystic Fibrosis Ireland, for the wonderful support it provides to people and their families living with CF.
I’m cycling to support the lobbying for continued research and funding into this condition so hopefully one day a cure will be discovered and
most importantly, I’m cycling for my beautiful daughter, Lily.
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